Available Resources for People With Cholangiocarcinoma
Being diagnosed with cholangiocarcinoma (CCA) can be overwhelming. That's why it is important to have the right support and information.
Here you will find helpful CCA patient education tools and resources.
Downloadable tools
Interactive Guide to Cholangiocarcinoma
This guide provides you with more information about CCA, including symptoms, diagnosis, and how the disease can affect daily life.
Biomarker Testing Discussion Guide
This guide includes questions you may want to ask your oncologist about CCA and biomarker testing to help you get the conversation started.
NGS Testing Guide for Patients
Next-generation sequencing (NGS) is a form of biomarker testing that identifies a broad range of genetic alterations in tumor cells. Ask your doctor about the role of comprehensive biomarker testing in determining the best care options for your unique type of CCA.
Additional support
Cholangiocarcinoma Foundation
The Cholangiocarcinoma Foundation (CCF) is a global organization dedicated to curing CCA and enhancing patients' quality of life by connecting patients and caregivers to resources, mentors, and support groups while also promoting scientific discovery through an annual research fellowship.
Visit the Cholangiocarcinoma Foundation
Nutrition Resource for People With CCA
The Cholangiocarcinoma Foundation (CCF) offers a free guide that contains helpful nutrition information, suggested meal plans, and recipes specifically for the CCA community.
Order the CCF Nutrition Guide
TargetCancer Foundation
TargetCancer Foundation (TCF) aims to advance the development of more effective and personalized treatments for people with rare cancers, including CCA.
Visit the TargetCancer FoundationNCCN Guidelines for Patients®: Gallbladder and Bile Duct Cancers
The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of 33 leading cancer centers devoted to patient care, research, and guidelines.
The NCCN Guidelines for Patients® provide an overview of CCA and potential management approaches to help you better understand your disease.
See the NCCN Guidelines for PatientsReferenced with permission from the NCCN Guidelines for Patients® for Gallbladder and Bile Duct Cancers, 2023. © National Comprehensive Cancer Network, Inc. 2023. All rights reserved. Accessed November 6, 2024. To view the most recent and complete version of the NCCN Guidelines for Patients, visit NCCN.org/patientguidelines. NCCN makes no warranties of any kind whatsoever regarding their content, use or application and disclaims any responsibility for their application or use in any way.
Understanding Clinical Study Results
This video provides information about what researchers look for in clinical studies and how results are measured.
CCA Community Resources
Remember, you are not alone. Read the stories and watch the videos shared by others diagnosed with CCA and their caregivers, and see how biomarker testing played a part in their journeys.
See CCA Community Resources